A Guide to Consumer Involvement - Improving the Quality of Ambulatory HIV Programs (pdf)
New York State Department of Health AIDS Institute
New York, NY
2005

A Guide to Consumer Involvement - Improving the Quality of Ambulatory HIV Programs (pdf)

Working in partnership with people living with HIV/AIDS (PLWHA) and diverse communities is critical to the success of any HIV program. Experience has shown that PLWHA provide a critical and necessary perspective on the development, implementation, and evaluation of programs and services that are designed to ultimately meet their needs as the consumers of those services.

Some of the ways an organization can involve consumers include:

  • > PLWHA consumer representation on the organization’s Board of Directors
  • > Establishment of an HIV-specific Consumer Advisory Board (CAB)
  • > PLWHA consumer representation on an existing Community Advisory Board

The goal of PLWHA consumer involvement is to develop, deliver, and improve the quality of programs to effectively meet the service needs of the individuals and families that rely upon them for their HIV health care.

This Guide provides suggestions for the successful involvement of members of the PLWHA community as partners in reaching this goal and includes a description, rationale, and implementation ideas for proven and effective methods of promoting and enhancing HIV/AIDS consumer involvement. This Guide is intended for use by clinical and non-clinical staff in HIV/AIDS health care programs to help them understand benefits to quality of care that come from optimizing consumer input.